Patients typically want to know what the future holds
If you’ve just been diagnosed with uveal melanoma—also known as ocular melanoma, choroidal melanoma, or iris melanoma—it’s important to know that there is a test that can accurately identify your tumor type or Class. Specifically, the test determines whether you are at low or high risk of the cancer spreading even after your eye tumor has been successfully treated.
The test is called DecisionDx-UM, and it provides valuable information to help you and your doctor individualize the management of your disease. Validated in a prospective multi-center study, the test is the most accurate prognostic test available for uveal melanoma.
One of the intentions of this website is to provide the information you need to decide with your doctor whether this test is right for you.
The Benefits of Knowing Your Tumor Type
There are immediate benefits to knowing your tumor type, including the ability for you and your doctor to clearly define the intensity of your monitoring and follow-up plans. While everyone hopes to land in the lowest risk group, most patients report that the information is extremely valuable to them, no matter the results (see Patient Profiles).
For one, doctors can know which patients require the most rigorous monitoring to catch and treat metastatic disease early. Half of all uveal melanoma patients may ultimately develop metastatic disease to the liver, which is currently incurable. The hope is that intensive monitoring may lead to early detection and treatment that could produce better outcomes for the patient.
Patients report other benefits of knowing their metastatic risk, including “peace of mind” and “ability to make plans” for themselves and their families. Studies have shown that most patients will choose to know their risk if they have the information and the opportunity is made available to them.