Advocacy Groups & Forums

Ocular Melanoma Foundation open_page_icon
The Ocular Melanoma Foundation (OMF) was established in 2003 by ophthalmologist and pharmacologist Dr. Robert C. Allen after his personal experience with eye cancer.

OMF’s mission is to accelerate and enhance scientific research, advocacy, and awareness of ocular melanoma and to provide education and support to patients, their families, and healthcare professionals.

On this site, you will find information about the disease as well as these patient forums to help you and your family connect with others affected by eye cancer:

Melanoma Research Foundation open_page_icon
CURE Ocular Melanoma (CURE OM: Community United for Research and Education of Ocular Melanoma) is the Melanoma Research Foundation’s initiative to increase awareness, education, treatment and research funding of ocular melanoma. To connect with other uveal melanoma patients, caregivers and their loved ones from around the world, visit:

The Choroidal Melanoma Yahoo! Group open_page_icon
With over 400 members, this is one of the largest chat forums for patients with eye cancer. While they all share one thing in common, members encourage broadening the conversation and share advice and stories that span far beyond their cancer.

A Cure in Sight open_page_icon_gry
A Cure in Sight is a not-for-profit organization founded by eye cancer survivor and advocate Melody Kling to raise awareness of the disease and to help those with ocular melanoma find and pay for their treatments.

EyeMelanoma.org open_page_icon_gry
EyeMelanoma.org was founded to provide uveal melanoma patients and their families with a place to find educational resources about the disease. The site offers links to various patient forums and advocacy organizations, journal articles and educational webinars, a “doctor search” to help locate ocular oncologists and retina specialists in your area, and a clinical trial search so you can stay up-to-date on the latest in experimental treatments.

 

 

 

Know your TYPE, Know your RISK
You’ve just been diagnosed with uveal melanoma, and it’s important to know that there is a test that can identify your tumor type—and the risk of your cancer spreading.

READ MORE
GETTING TESTED       Timing is Critical
To know your tumor type and risk, a biopsy must be taken BEFORE radiation treatment.

READ MORE
Talk to                 Your Doctor
Use this discussion guide to talk to your doctor about the genomic test to learn your tumor type, or CLASS.

DOWNLOAD PDF

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